Allie's GI doc
Allie saw her GI doc today. It went really well. Susanne figured they would just think she was crazy because the radiologist didn't find much when he dialated her esophagus. But Dr. Harnsberger was great. She said she has a teenage girl who had the esophagial repair as a baby who just calls and tells the doc when it is time for a dilatation. Apparently the scar tissue part just stops moving food well and so the dilatation doesn't open the esophagus a lot but gets the motility going again. So..she is going to start scoping Allie every six months so that we don't have to get to the point where she can't eat anything and it needs to be done in the ER. She also showed Nan Allie's growth chart. Both the pediatrician and the endocrinologist said they will probably be starting Allie on growth hormones this fall and she wasn't sure why. Well it is her height that dropped from 75th percentile to the 3rd percentile. She has one hormone level that is pretty low so they will supplement that. This makes it sound like Allie is not doing so well, but these are both pretty little inconveniences. She really is doing so well and talking and developing so much better than ever expected. Aren't we glad for the great blessings in our lives? We love having these two beautiful babies in our house!
posted by Auntie Ann at 11:54 AM
4 Comments:
I'm glad things seem to be going well with Allie! We miss you guys and hope it won't be too long before we can see you again.
So this esophogus (sp?) problem won't ever be cured? Is it something she will have to deal with her whole life? Is the not growing thing related to some of her other problems? You all seem to take it in stride. It can be so stressful worrying about a child. I am glad the GI doc is easy to work with and seems to know what to do. We hope to meet Allie and Preston in person some time.
Allie's esophogus will probably always cause her problems but there are lots of people who have chronic problems with acid reflux. Her's is a bit different but requires the same sort of treatments. The growth hormone is probably related to the missing parts in her brain, but since everything else looks so good it is a pretty small price to pay. Don't think we are always calm about stuff. Nan was a nervous wreck going to the doc this time because she gets sick of docs thinking she is just over reacting. WE are always more calm after all is said and done. Plus, again, the dire warnings about her being a vegetable make this all so much easier to take. She is just a normal, crazy, independant 2 year old with some minor medical issues.
Auntie Ann facts on your health Acid Reflux Food, I hope you like thistopic here . Gastroesophageal reflux disease, commonly referred to as GERD, or acid reflux, is a condition in which the liquid content of the stomach regurgitates (backs up, or refluxes) into the esophagus.I have suffered from this myself The liquid can inflame and damage the lining of the esophagus although this occurs in a minority of patients.Anyone who has also suffered from acid reflux knows the pain one feels.I have a site about this at Acid Reflux Food. Anyway enjoyed your site will return soon.
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